עמותת אורי

Ori Fund

Supporting families of children with rare mitochondrial diseases

 

"Ori Fund" in memory of Ori Levi

About Our Organization

The Ori Fund was created in 2007 in memory of Ori Levi who, at the age of two years and three months, passed away from Leigh disease, a rare genetic mitochondrial (metabolic) disease. 

The Ori Fund was set up to support families through a number of services: financing medical testing, providing emotional and professional guidance, and referring families to medical and para-medical professional assistance. Besides assisting the families, the Ori Fund strives to raise public awareness of rare diseases through broad media and social network coverage, and community projects (read more)

Our Vision

The Ori Fund aims to provide a home for parents whose child has been diagnosed with a rare mitochondrial disease, and to promote public awareness of these syndromes through community projects.

 

Even when in total darkness, we can step into the light

Never stop believing!

 

Ravit and Shaul Levi

Ori’s parents

The Ori Fund founders

(Charity number 580473775)

 

We are a certified charitable organization pursuant to section 46 of the Israeli Income Tax Ordinance, conferring tax credits for donations.

Board of Trustees (Volunteers)

Shaul Levi – Chairperson
Ravit Shani-Levi – CEO
Hadas Levi Setzemsky
Tal Moshe Setzemsky
Assaf Gottlieb
Yfah Burstin

רוית שאול ואורי